On Saturday, 11-24-01,
the physical therapist came by again and we reviewed the exercises she
taught me on her first visit and showed me some new ones to help me with
my balance. Things seem to be going well for me on that front as I STILL
haven't had to use the wheelchair or walker to get anywhere yet. I'm
feeling pretty damn proud of that one!
I even took a short walk from the house to the nearest store the other day
to buy some snacks, just to get out of the house and to test my
stamina. It took a while, being 3 blocks away, and I was pretty
tired afterwards and had to take a short nap. But the feeling
of freedom and independence it gave me were well worth it. On top of
that it was good exercise.
My daughter, Casey, spent the
weekend with me like she has since I got out of the hospital and, as
always, it was great just having her around. You look for little +'s
when you're out of action with something like this, and one of my little +'s
is that I'm near my family and especially my daughter these days instead
of on the road somewhere working.
We played on the computer and watched DVD's and just generally hung out
together. She brought her report card and it was generally pretty
good. She made me a turkey in typing class made of keyboard letters
that's pretty cool too. It's called ASCII art. Maybe next weekend we'll go see
She asked if I'll get better until I'm like I used to be, like when we
used to go to amusement parks and stuff. We LOVE amusement
parks. Our favorite is Cedar
Point, in Sandusky, Ohio because we're big time roller coaster
fans. I told her that I would and decided that's one of my new
goals: Strong enough to make a Cedar Point trip when it opens next
May. Hey, I figure if nothing else, we'll get to the front of the
lines with my wheelchair access!! ( GOT to find those little +'s
On Monday, 11-26-01, I went back to the Cancer
Treatment Center and got my 3rd Rituxan
treatment. This time I was out in the lounge area with everyone
else, sitting comfortably in a recliner next to a fellow named
Wayne. Everything went well and even though the Benedryl made me a
little groggy, I stayed awake the whole time. ( OK... I took a nap
when I got home! )
I played games and jotted down some thoughts and notes on my Palm III-C,
had a lunch mom got from the cafeteria, joked with the nurses and chatted
with Wayne. ( When he was awake, that is - He took a couple of
Wayne is an older gentleman ( maybe in his 60's or 70's? - I didn't ask )
and was there getting his treatment as well and we had a nice conversation
that was pretty interesting. It turns out that he has NHL as well
and he's had it since 1991.
It's been in remission 5 times for him, so this is his 6th bout with
it. The first 3 times he had it he got chemo treatments and it went
into remission. Then Rituxan came out and it did the trick alone for
him the next 2 times. This time he's on the Rituxan again and feels
confident all will go well. He looks very healthy for his age,
cancer or not, has a great attitude and you just can't help but like the
He told me that I'm the first other person in all those years that he ever
met that also has NHL. He was really interested to talk with me
because of that commonality, and I was very interested to talk with him as
well, since he's already been down a path I've just barely set foot on.
When I got home I thought it might be nice to find some other folks that
have that common link to me, NHL, (Ok, ok... I took a nap first ! ) so I
went to my favorite search engine, Google,
and went looking for some. I found them here: LRFA's
LRFA = Lymphoma
Research Foundation of America.
There, I found a LOT of people just like me and my family and friends that
are all dealing with various forms and stages of NHL. Some are new
like me, but some are a wealth of knowledge and resources, having traveled
this path for years. It was like stumbling onto a gold mine for
support and encouragement and camaraderie. They gave me a warm
welcome to the group and I'm really looking forward to getting to
know the folks there.
It's only been a few days since my Thanksgiving update, so not much has
changed physically for me. Lower legs, ankles and feet are still
swollen and sore, so I'm not quite ready to go jogging yet. My left
thumb and forefinger have been numb for a couple of weeks and today my
left arm seems to be feeling it a little as well. I don't know what
that's all about because I kept forgetting to ask, but I've got it in my
Palm Pilot now with the rest of this week's questions for the Oncologist
on Monday. If it doesn't feel any worse I'll wait till then,
otherwise I'll make a phone call and get to the bottom of it.
Stitches are still... uh... stitched. They should be coming out on
Monday as well when I visit the good doctor.
Other than that, I'm feeling pretty good. I'm still in good spirits,
exercising daily and learning what I can about my disease, treatments and
The force is with me!